You are probably tired of hearing about me having cancer (I know I am) but I feel a little obligated the update the blog since last time I left it alone for a month I was half-dead intubated in the ICU.
So…let’s see. I am still doing photopheresis two days a week but we just switched to every other week which is nice since it takes up the whole day and I am super tired afterward. I am weaning off of the steroids that I was put on in December to deal with the GVH. The taper is really slow and I was on a pretty high dose so I will probably be off of them around the end of June. I HATE the steroids, they make me irritated and anxious and they also make my face super puffy. I haven’t looked at myself in the mirror in about two months now.
I had a quick two day hospital admission a couple weeks ago for a fever, but luckily all the cultures came back negative and I was free to go after my 48-hour fever hold/time-out. It was weird being back in the hospital. That last hospital admission broke me in a way none of the treatments before got to me and going back was hard.
Like I said before, my doctors expect my immune system to rebound around the end of 2016, so look forward to my bad self at as many senior events as possible while I laughably finish the humbio core as you all graduate. I’m not sure how much I will update the blog anymore, hopefully nothing medically interesting will happen to me but maybe I will become more interesting in my general life so who knows?