Nice Boring Blog Post

You are probably tired of hearing about me having cancer (I know I am) but I feel a little obligated the update the blog since last time I left it alone for a month I was half-dead intubated in the ICU.

So…let’s see. I am still doing photopheresis two days a week but we just switched to every other week which is nice since it takes up the whole day and I am super tired afterward. I am weaning off of the steroids that I was put on in December to deal with the GVH. The taper is really slow and I was on a pretty high dose so I will probably be off of them around the end of June. I HATE the steroids, they make me irritated and anxious and they also make my face super puffy. I haven’t looked at myself in the mirror in about two months now.

I had a quick two day hospital admission a couple weeks ago for a fever, but luckily all the cultures came back negative and I was free to go after my 48-hour fever hold/time-out. It was weird being back in the hospital. That last hospital admission broke me in a way none of the treatments before got to me and going back was hard.

Like I said before, my doctors expect my immune system to rebound around the end of 2016, so look forward to my bad self at as many senior events as possible while I laughably finish the humbio core as you all graduate. I’m not sure how much I will update the blog anymore, hopefully nothing medically interesting will happen to me but maybe I will become more interesting in my general life so who knows?

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About Brooke Vittimberga

I have cancer...oops
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8 Responses to Nice Boring Blog Post

  1. Charlotte says:

    Keep writing Brooke! If not for your blog at least for yourself privately. But either way, I’m still reading 🙂

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  2. Barbara Cohen says:

    I LOVE reading this boring post! It’s a long, tough road, but you are clearly on the way to your former, healthy self!

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    • Yes, I am on the way! Slow and somewhat steady. I really appreciate all of your support throughout this

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      • Barb Cohen says:

        Don’t thank me. It gives me such pleasure to read your posts & see the strength you exude throughout this miserable, f’ing ordeal. I am so looking forward to the day you feel like you have turned the corner. At that point I am booking my flight to San Francisco & you & I are going out for a fabulous survivors’ celebration! I’ll clear my calendar as soon as you give me the word.
        I love your crazy grandmother. She was a flower girl in my mom’s wedding. I babysat for your dad a hundred years ago. I hate that AML is the thing that introduced us, but although we got dealt a shitty hand, we have some hearty stock in our bloodline & I’m looking forward to meeting you and watching you grow from this.
        Hang in there & keep doing what your docs tell you to do. You’re getting the best treatment in the country & tho I know it’s hard to believe some times, you WILL get beyond this.
        Keep me posted. You are in my thoughts always. I stopped praying after my diagnosis. So I won’t tell you you’re in my prayers. But you are most definitely in my thoughts & I am sending positive vibes north & west from Dallas. ❤️

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  3. Hi Brooke,
    I am also 20 years old, but have Stage 4 Ewings Sarcoma (extremely rare bone cancer). I also blog, and actually found your blog through Truth365! Thanks for sharing your story- I know for myself, keeping up with posting can be tedious! I was in Nursing school when I was diagnosed last spring (also 19, also a sophomore) and totally get the loss part of this journey! If you want, I’m on FB or you can look up my blog, typeonetrio.com! (The title is due to the fact that I have multiple diseases lol). I just actually finished my Stem Cell Transplant and had a lovely run in with VOD. I think we have a bit in common. Anyways! Thanks for your posts! I enjoyed reading them!
    A fellow cancer fighter,
    Caleb

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  4. Hi Brooke, My name is Naomi. In 2010 I was diagnosed with AML. I have no idea what subtype. I wanted to let that I for several years after my bone marrow transplant, even now still I feel some of the things you describe. You have every right to be pissed. I’m on ‘the other side’ of treatment now. I always thought, after chemo, after the transplant all that crap would be behind me. But it doesn’t just go back to normal I learned. Anyway, I’m a 20-year-old college student. And I just wanted to say Hi.

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  5. Lucas says:

    Hi my name is Lucas. I am 36 years old and I am a cancer survivor. I was 25 when I was diagnosed with Hodgkins Lymphoma. I under went chemo and radiation for a year. It SUCKED!!!! I lost all my hair, 70 lbs and my career as a law enforcement officer.. It took me another year to recover from the treatment by doing physical therapy and having a great family that supported me.
    Believe me you can do this. There’s no way people can understand or feel what you feel. So I admire your blogging your situation.
    Keep your head up and don’t give in. You can beat this thing.. Cancer is not stronger than human will..

    Like

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