Category Archives: Uncategorized

Thoughts on Dying

TL;DR: Donate to my baby hero fund at the link here. If/when we reach $10,000, I can establish a fund dedicated specifically toward young adult survivorship and GVHD. Also, if you have donated to St. Baldrick’s in the last year or … Continue reading

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Quick Health Update

Because I have been having such a hard time, I haven’t written as much about my improvement as I could have. People are confused and I am getting a lot of questions, so let me explain: My eyes, mouth and … Continue reading

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You Never Get Used to Suffering

I literally forgot that I also have LIVER gvhd in my last post. I have more problems than I can even remember. Anyway, my health has been improving (very slowly). When the scleroderma first appeared in September, they told me … Continue reading

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Not Alive or Dead

This situation is difficult to contextualize. Compared to many cancer patients, I am somewhat lucky. I am alive. My cancer hasn’t returned and it’s been almost 2.5 years, which means it is unlikely to recur. On the other hand, compare … Continue reading

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Don’t Tell Me 2018 Will Be My Year

If I had a dollar for every time I’ve heard that over the past few weeks, maybe I’d be able to make a dent in my copays. There is no situation where I will be in good health within the … Continue reading

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Surviving (kinda)

To everyone who has contacted me over the past few weeks – thank you. I feel the love and support. I’m sorry that I haven’t been able to get back to most of you. I just can’t right now. I … Continue reading

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Acute Renal Failure

I feel overwhelmed by the task of conveying this past week. On Saturday I was admitted to Stanford hospital for fever symptoms. I can’t actually get a fever because prednisone suppresses fevers and I’m on a very high dose, but … Continue reading

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