Day +157: Life on the Outside (kinda)

So I have been out of the hospital for a couple of weeks and while it is a huge relief to no longer have monitors/people/lights everywhere (especially at night), I still feel very trapped.

Because my immune system is so compromised (due to the transplant and then the GVH treatment), I have to follow BMT precautions at all times. This means washing my hands 4 billion times a day, wearing a mask anytime I leave the house, not going to public and/or crowded places, and only eating processed or freshly home-cooked foods that follow the limited GVH diet. Basically, I am mostly confined to my house except for the 2 delightful days that I spent at the hospital outpatient clinic each week.

I think it is really difficult for people to grasp this concept because I keep getting invited to do things I cannot do, even though I feel like I’ve explained this situation about a million times.

I am projected to be immunocompromised most likely through the rest of 2016, so the current estimate of when I can return to school is winter quarter 2017. I am really exhausted and angry that I am missing out on so much. I feel really distant and separated from my old life and I hate the stupid mask that I have to wear literally to sit on the front porch.

I have some goals for this year, like taking some classes from home and maybe learning Spanish and I would love to fundraise for AML research or maybe do some more formal writing but first I am just going to be sad and angry for a little bit because life isn’t fair.

^me pretending to be a good sport.

Advertisements

One thought on “Day +157: Life on the Outside (kinda)

Add yours

  1. Yes! You are so right, Brooke! Life isn’t fair….we are sending you continued love from your Boston fans. Thank you for sharing this with us all. ❤️

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

Create a website or blog at WordPress.com

Up ↑

%d bloggers like this: