Waking up from 'confusion' (as the doctors and my family have nicely put it) has been a fairly confusing experience. I mentioned in my last blog post that a drug I was on (sirolimus) was making me 'confused.' I hallucinated that I only had one leg and it was a tree trunk. I was paranoid... Continue Reading →
Bone Marrow Match and Registry!
Hey My baby brother Jack (baby as in 16 years old, 6 feet tall, rows boats really fast, and eats 3700 calories a day) HAS THE SAME BONE MARROW AS ME. My doctor came in and congratulated me and I literally almost got angry because what could he be congratulating me for? Being the 1... Continue Reading →
Acute Myeloid Leukemia and other fun things
Hi friends! This is as weird for me as it is for you, but a few weeks ago I was diagnosed with Acute Myeloid Leukemia. You are probably frantically googling AML right now, so I'll give you a crash course: I have pediatric AML, which is awesome. Outcomes are better and more consistent. This is... Continue Reading →