Scary, Rapid Decline

My symptoms in my eyes, mouth, hands, and feet have continued to improve and they are essentially gone. I have a bigger problem, though. I have developed sclerodermic gvhd, which is essentially skin tightening. My skin has become thick, immobile, and tight on almost my entire body. My chest and abdomen are the worst, to... Continue Reading →

Back to School

How weird, to be going back to school after watching a timeline full of graduations, trips, new jobs, and graduate school programs. I started last week, and it is bizarre. I watch the freshman in the quad or the older students going to campus events and think "was that really ever me?" I guess it... Continue Reading →

Hello. I went to beverly hills

TL;DR: I have been really sick and am hopefully getting better. I’m raising money for Stupid Cancer here. I have reached insanity in dealing with this GVHD. I got home August 12, after a summer during which I got progressively more sick until I ended up in a really scary place. I lost 20 lbs, had... Continue Reading →

Chronic Illness and Disappointment

This is something that I have debated sharing, because it's hard to share the hard stuff, but I've worked too hard to keep this site honest and transparent to give up now. I have been having a hard time coping. The way I got through treatment was by knowing that it would eventually end. The... Continue Reading →

Being Left Behind

It's been a crazy few weeks. I started an internship at Memorial Sloan-Kettering on June 5. I also took my finals in New York during the first two weeks of working (s/o to the quarter system) and flew back for a weekend for graduation and a family event. In the last couple of weeks I... Continue Reading →

Stanford while Disabled

I try not to complain too much about my body not working. First of all, I think it's pretty obvious that this sucks so it doesn't really need to be said. Second of all, I don't think about it all that much. One of my roommates asked me the other day if I ever just want... Continue Reading →

Pulling it Together

I took the stupid prednisone. I stared at it for like three days before I did it, but the alternative was "die of GVHD" so I figured it was worth it. I have been ridiculously socially unacceptable the past few weeks between the skin flaking off my body, the gut GVHD making me eat like... Continue Reading →

Reasons to Decline Prednisone: Balance

Many of you may have heard of the infamous Ketchup Fight 2k16, in which I decided that I was no longer able to abide by the GVHD diet 100%. The diet involved canned fruit, plain meat (think turkey lunch meat), white bread, and plain spaghetti. You probably think you’ve had plain spaghetti before, but I’m... Continue Reading →

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