Maybe this motel will burn down, too

Well, when it rains, it pours right? It’s been pouring for weeks, and the hill behind our house slid right through our back wall. Awesome!!

Screen Shot 2017-02-13 at 9.53.00 PM.png

I’m sure you can guess which house is mine. Anyway, the inside looks like this:

Screen Shot 2017-02-13 at 9.53.59 PM.png

So, we’re pumped about that. If you want to see my dad on the news, click here:

We were all pretty devastated for a few days. Sure, it’s just stuff, but it continues to feel like the universe will not give us a break. The day after the mudslide, my brother and dad were staying in a motel and the fire alarm went off. My brother looked at my dad and said “Wouldn’t it be funny if this motel burned down?” So, that’s how we’re handling this.

I had my first clinic in 5 weeks (!!!!) today. Clinics are starting to revolve around long-term care – physical therapy, figuring out how to eat with a damaged gut, dealing with my hair and post-menopausal issues. I have developed joint pain in my hips, knees, and ankles. It’s the worst in my hips, to the point that when I wake up in the morning I can barely walk. It’s probably AVN, which is necrosis of the joints caused by long-term prednisone use. It’s not really fixable, other than with knee/hip replacements, which are obviously sub-optimal for a number of reasons. I’m getting an MRI at my next clinic in 2 weeks. Speaking of my next clinic, we are going to do my first test for immune reconstitution! Since I am now over 16 months post-transplant, 2 months off prednisone, and have not been in-patient in over 2 months, we think there is a chance my immune system is functional enough for me to stop being technically “immune compromised.” This would also mean I would be eligible for re-vaccination. I cannot wait. It scares me to be in the world unvaccinated, especially in an area with such a high rate of elective vaccination refusal (which is so dangerous not only for people who refuse, but also for everyone around them!! It makes me so upset).

Anyway, I’m chugging along. I didn’t fail my midterms, and I have a summer internship offer on the table doing cancer research in NYC. I haven’t decided exactly what I will do yet, but it feels nice to have options. Life continues to be confusing, a mix between Stanford and a world I feel tied to in so many ways. I feel both honored and angry that I am experiencing it all.

PS if you are a Stanford student in the Class of 2017 come check me out at FACES of our Year on Feb. 22!

4 thoughts on “Maybe this motel will burn down, too

Add yours

  1. Oh Brooke, how cruel the universe is!!! I am so sorry to read about your family’s disaster…sent a donation and continued love and prayers to you and your whole family. As always, thank you for taking us along this journey with you, with such an honest, clear and eloquent voice.


  2. OMG! Good grief. Can’t y’all catch a break?! I have been following your blog as long as you’ve been writing. I really enjoy your posts. My husband is/has/was?? treated for AML with SCT and suffers from GVHD as well (albeit he has not gone through what you have). Hang in there! Keep posting! Best, Kristin


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

Up ↑

%d bloggers like this: